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The following health tips for HIV+ participants are
courtesy of Positive
Pedalers of California, with revisions
by Paolo Troia-Cancio, Medical Director of CARES and
Assistant Clinical Professor of Medicine, Division
of Infectious and Immunologic Diseases, UC Davis Medical
Center; and, Guillermo Acuna, PhD., Health Educator
for CARES.
Please note that this list is not inclusive of all
possible circumstances.
Nutrition
- Eat 2-3 times a day, even if you're not hungry.
- HIV+
Cyclists need more protein - take a supply of supplement
bars and drinks, especially if keeping weight
on is a challenge.
- Food-drug interactions
- Grapefruit juice may increase
blood levels of non-nukes: (Rescriptor; Sustiva;
Viramune) and Pis: (Lexiva, Agenerase,
Crixivan, Fortovase, Invirase, Kaletra, Norvir,
Reyataz, Viracept). Consider not drinking grapefruit
juice
during the event.
- Caffeine may increase dehydration.
- Alcohol can also
increase dehydration.
- Special attention in both
cases if you’re taking
Crixivan, which requires additional fluid intake
to prevent kidney stones.
- Food supplement-drug interactions
- Mega Garlic Supplements
(regular garlic in food is fine) can decrease
Fortovase and other protease inhibitors
levels in your body.
- St. Johns Wort decreases amount
of Crixivan and other PIs (see above) in your body.
- High
levels of Vitamin E already included in Agenerase.
- The
old Videx tablets contain Antacid.
- Meds that need
to be taken WITH FOOD
- Norvir
- Reyataz
(no antacids)
- Kaletra
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- Viracept
- Fortovase
- Invirase
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- Meds that need to be taken on
an EMPTY STOMACH; i.e. one hour before or two hours
after a meal.
- Videx,
Videx EC
- Crixivan (a light low-fat
snack is alright), can’t
take together with the old Videx tablets (Videx
EC is fine)
- Sustiva (food increases med levels in blood,
which can increase side effects)
- Meds that can be
taken WITH OR WITHOUT FOOD
- Epivir
- AZT
- Combivir
- Ziagen
- Epzicom
- Viread
- Truvada
- Trizivir
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- Zerit
- Viramune
- Rescriptor
- Fuzeon
- Lexiva
- Agenerase
- Crixivan
(but only if taken together with Norvir)
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Hydration
- Drink a balance of water and electrolyte replacement
fluids.
- Be sure to ask event volunteers if ice is
filtered.
- Drink water all day and all evening long!
Dehydration can continue while you sleep, so keep
a full water
bottle with you at night to drink.
- Adequate fluids
are especially important with Septra/Bactrim, or
any other antibiotic.
- If you take Crixivan, keep
a close watch on your fluid intake to avoid problems
with your kidneys. You
need to add an additional 1.5 liters above your replacement
fluid requirement [which is already increased from
exercise and exposure].
Side Effects
- The big ones are diarrhea, nausea, indigestion,
and headache.
- Diarrhea: expect to get it! Many things
can contribute
to diarrhea during the ride: heat, stress, change
in foods, etc. As all these things can add to existing
GI side effects. Be prepared! Take Imodium or lamotil
with you!
- Nausea and indigestion: before the ride,
think about what upsets your stomach. Vitamins?
Certain vegetables?
Spices? Some of your medicines? Avoid foods that
do this.
- Taking medicines with food can help reduce
nausea and indigestion.
- A few tips: cool foods help
calm your stomach. Hard candies can sometimes help.
Get out of the sun, and
rest as much as you can. A cool cloth on your head
and/or wrist can help to alleviate heat.
- Headache:
dehydration can cause headache, take some ibuprofen
or acetaminophen with you. Also, stopping
caffeine abruptly can cause headache, so if you drink
coffee regularly, drink it on the ride.
- Besides the
medicines, the sun, the new food, and the stress
can contribute to existing side effects.
- Bottom
line: if you're not feeling right, tell somebody
and get help. Talk with other Positive Pedalers,
your
tent mate or riding partner. Nothing is more important
than staying well.
- Do not hesitate to consult medical
personnel for questions and concerns.
Adherence
- You're out of your normal setting - how will you
remember to take your medicines? Make a plan before
you leave. Discuss treatment options and tips for adherence
with your medical provider and/or other Positive Pedalers.
Medical Tips
- Before the Challenge:
- Make a list of all your medications
and doses and keep it with you.
- Talk with your doctor
about the Challenge and ask about special needs
before you leave.
- Make sure you have your medical
provider information and telephone numbers.
- Best
not to start a new regimen within one month
before the ride.
- During the Challenge:
- Keep medications out of direct
sunlight, as much as possible.
- Medication sets may
be easier to deal with on rides than individual
pill bottles; these are readily available
at pharmacies or often from medical providers.
- No
anti-retrovirals need to be refrigerated if
they'll be used within one month.
- If you have special needs
or feeling "off",
always check in with medical personnel in camp
or at rest stop.
Sun
- Sun causes dehydration - drink plenty of water
and electrolyte replacement fluids!
- Septra/Bactrim
and some antibiotics, such as doxycycline
and tetracycline, cause sun sensitivities. Wear high
SPF sunscreen on all exposed body parts and reapply
regularly - you're sweating the sunscreen off, too!
- Use
plenty of sunscreen with SPF even if you're not
taking antibiotics.
Hygiene
- If you have the opportunity to wash your hands,
use warm water and wash for 15 seconds.
- Wash hands
or use Purell/antibiotic lotion/sanitizer after
using the portable toilets and bathroom whenever
possible. Carry your own supply in case it is not
available at all locations.
- Wash hands in evening
camp before all meals.
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